<?xml version='1.0' encoding='UTF-8'?><?xml-stylesheet href="http://www.blogger.com/styles/atom.css" type="text/css"?><feed xmlns='http://www.w3.org/2005/Atom' xmlns:openSearch='http://a9.com/-/spec/opensearchrss/1.0/'><id>tag:blogger.com,1999:blog-9163576136255290326.post6117402887990711823..comments</id><updated>2009-12-07T18:51:33.800-08:00</updated><category term='teen illness'/><category term='ocean'/><category term='Harvard'/><category term='Twitter'/><category term='New York Times Best Selling Author'/><category term='road trip'/><category term='Kenneth Chancey'/><category term='Oprah'/><category term='beach'/><category term='shopping'/><category term='September'/><category term='chronic illness'/><category term='nonfiction writing'/><category term='query'/><category term='writing groups'/><category term='Lord'/><category term='harness'/><category term='agents'/><category term='dreaming'/><category term='Jay Asher'/><category term='burdens'/><category term='shallow water'/><category term='mimicry'/><category term='Bible'/><category term='heroes'/><category term='procrastination'/><category term='Debbie Macomber'/><category term='Facebook'/><category term='Casting Crowns'/><category term='tide'/><category term='exercise for the mind'/><category term='Copyblogger'/><category term='broken'/><category term='promotion'/><category term='doctor'/><category term='freelance writing'/><category term='determination'/><category term='Kevin Sharp'/><category term='Dysautonomia'/><category term='author'/><category term='storms'/><category term='lightning'/><category term='God'/><category term='selling articles'/><category term='fiction writing'/><category term='goals'/><category term='fall'/><category term='clipped wings'/><category term='calming'/><category term='faith'/><category term='journey'/><category term='heart'/><category term='television'/><category term='unfinished manuscripts'/><category term='Francine Rivers'/><category term='editor'/><category term='wishes'/><category term='trials'/><category term='dreams'/><category term='trouble'/><category term='church'/><category term='selling'/><category term='reminders'/><category term='praise'/><category term='Matt Cheuvront'/><category term='don&apos;t quit'/><category term='editing'/><category term='quotes'/><category term='floods'/><category term='critique groups'/><category term='teens'/><category term='hot chocolate'/><category term='musings'/><category term='markets'/><category term='writing'/><category term='health'/><category term='Blog'/><category term='conferences'/><category term='teen writers'/><category term='money'/><title type='text'>Comments on Music of the Words: Dysautonomia-A Mother's View</title><link rel='http://schemas.google.com/g/2005#feed' type='application/atom+xml' href='http://www.musicofthewords.com/feeds/6117402887990711823/comments/default'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9163576136255290326/6117402887990711823/comments/default'/><link rel='alternate' type='text/html' href='http://www.musicofthewords.com/2009/11/dysautonomia-mothers-view.html'/><author><name>Magnolia</name><uri>http://www.blogger.com/profile/05522421553629482482</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><generator version='7.00' uri='http://www.blogger.com'>Blogger</generator><openSearch:totalResults>6</openSearch:totalResults><openSearch:startIndex>1</openSearch:startIndex><openSearch:itemsPerPage>25</openSearch:itemsPerPage><entry><id>tag:blogger.com,1999:blog-9163576136255290326.post-3356145447206968419</id><published>2009-12-07T18:51:33.800-08:00</published><updated>2009-12-07T18:51:33.800-08:00</updated><title type='text'>Just happened upon your blog entry while trying to...</title><content type='html'>Just happened upon your blog entry while trying to find a citation for something I was talking about online.  ... I have dysauto as well and it really struck me because my mother has expressed similar sentiments at times; every one of us with dysautonomia that has a parent to fight with us for a diagnosis and for better treatment is so very fortunate.  :-D</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9163576136255290326/6117402887990711823/comments/default/3356145447206968419'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9163576136255290326/6117402887990711823/comments/default/3356145447206968419'/><link rel='alternate' type='text/html' href='http://www.musicofthewords.com/2009/11/dysautonomia-mothers-view.html?showComment=1260240693800#c3356145447206968419' title=''/><author><name>Heather</name><uri>http://www.blogger.com/profile/10412675891529967334</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.musicofthewords.com/2009/11/dysautonomia-mothers-view.html' ref='tag:blogger.com,1999:blog-9163576136255290326.post-6117402887990711823' source='http://www.blogger.com/feeds/9163576136255290326/posts/default/6117402887990711823' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-986205583'/></entry><entry><id>tag:blogger.com,1999:blog-9163576136255290326.post-7995580987247134017</id><published>2009-11-22T15:23:27.445-08:00</published><updated>2009-11-22T15:23:27.445-08:00</updated><title type='text'>My wife is battling her second bout with cancer. T...</title><content type='html'>My wife is battling her second bout with cancer. The first time...I prayed for healing and she had her entire colon removed. This time I also prayed for healing and she has had a radical bilateral masectomy. She has had more body parts removed than I have fingers on both hands.&lt;br /&gt;&lt;br /&gt; I have often wished I could switch places with my dear wife....I can only imagine what it must be like with children.&lt;br /&gt;&lt;br /&gt; Although &amp;quot;we&amp;quot; are christians....we are still human beings. The Lord understands your gamut of emotions. Whether &amp;quot;we&amp;quot; see it or not.....He is still sovereign.....and someday it will make sense. &lt;br /&gt;&lt;br /&gt; You and your family will be in &amp;quot;our&amp;quot; prayers!! &lt;br /&gt;&lt;br /&gt; &amp;gt; Hebrews 13.14 ~ For here we have no lasting city, but we seek the city that&lt;br /&gt;&amp;gt; is to come.&lt;br /&gt;&amp;gt; 2 Corinthians 4.17-18 ~ For this light momentary affliction is preparing for&lt;br /&gt;&amp;gt; us an eternal weight of glory beyond all comparison, as we look not to the&lt;br /&gt;&amp;gt; things that are seen but to the things that are unseen. For the things that&lt;br /&gt;&amp;gt; are seen are transient, but the things that are unseen are eternal.&lt;br /&gt;&amp;gt; Colossians 3.1-3 ~ If then you have been raised with Christ, seek the things&lt;br /&gt;&amp;gt; that are above, where Christ is, seated at the right hand of God. Set your&lt;br /&gt;&amp;gt; minds on things that are above, not on things that are on earth. For you&lt;br /&gt;&amp;gt; have died, and your life is hidden with Christ in God.&lt;br /&gt;&amp;gt; 2 Corinthians 12.10 ~ For the sake of Christ, then, I am content with&lt;br /&gt;&amp;gt; weaknesses, insults, hardships, persecutions, and calamities. For when I am&lt;br /&gt;&amp;gt; weak, then I am strong.&lt;br /&gt;&amp;gt;&lt;br /&gt;&amp;gt; The common thread through each of these passages is this: we hope in the&lt;br /&gt;&amp;gt; gospel, not in our circumstances. We hope in Jesus, not people. The end of&lt;br /&gt;&amp;gt; our hope is not that our suffering is going away in this life necessarily&lt;br /&gt;&amp;gt; (although it might); the end of our hope is being with Jesus in heaven. We&lt;br /&gt;&amp;gt; ought to rejoice even in the suffering that God brings into our lives&lt;br /&gt;&amp;gt; because we know that it will all work for our benefit by bringing us closer&lt;br /&gt;&amp;gt; to Him!&lt;br /&gt;&amp;gt;&lt;br /&gt;&amp;gt; Both pain and pleasure are meant to point us to the same reality; namely,&lt;br /&gt;&amp;gt; that Jesus Christ is infinitely beautiful and so much more than enough for&lt;br /&gt;&amp;gt; our every need. Living for Him, even suffering for Him, is worth every&lt;br /&gt;&amp;gt; moment of affliction! Why? Because Jesus shows you such beauty in pain,&lt;br /&gt;&amp;gt; because He is there and He is carrying us through. C.S. Lewis said, “God&lt;br /&gt;&amp;gt; whispers in our pleasure and screams in our pain.” That is so true.&lt;br /&gt;&amp;gt;&lt;br /&gt;&amp;gt; The sovereignty of God gives my wife&amp;#39;s second battle with cancer a purpose.&lt;br /&gt;&amp;gt; If God were not sovereign, disability and suffering would be pointless.&lt;br /&gt;&amp;gt; So we cling to the hope that the God who spoke the universe into existence&lt;br /&gt;&amp;gt; spoke these “slight, momentary afflictions” into &amp;quot;our&amp;quot; life for our good.&lt;br /&gt;&amp;gt; Disability and suffering and me and my wife exist for the glory of God. We&lt;br /&gt;&amp;gt; pray that in times of suffering and times of pleasure, our lives would&lt;br /&gt;&amp;gt; magnify the One who “died for all, that those who live might no longer live&lt;br /&gt;&amp;gt; for themselves but for him who for their sake died and was raised (2&lt;br /&gt;&amp;gt; Corinthians 5:15).”</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9163576136255290326/6117402887990711823/comments/default/7995580987247134017'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9163576136255290326/6117402887990711823/comments/default/7995580987247134017'/><link rel='alternate' type='text/html' href='http://www.musicofthewords.com/2009/11/dysautonomia-mothers-view.html?showComment=1258932207445#c7995580987247134017' title=''/><author><name>Ike</name><uri>http://www.blogger.com/profile/09595879576794400791</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.musicofthewords.com/2009/11/dysautonomia-mothers-view.html' ref='tag:blogger.com,1999:blog-9163576136255290326.post-6117402887990711823' source='http://www.blogger.com/feeds/9163576136255290326/posts/default/6117402887990711823' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-645483749'/></entry><entry><id>tag:blogger.com,1999:blog-9163576136255290326.post-3494224294805972677</id><published>2009-11-16T14:40:00.777-08:00</published><updated>2009-11-16T14:40:00.777-08:00</updated><title type='text'>Cyberhugs coming your way!

One of these days, I t...</title><content type='html'>Cyberhugs coming your way!&lt;br /&gt;&lt;br /&gt;One of these days, I truly hope someone comes up with a bio bed like they had in Star Trek.  At least then, the guesses will be at least SWAGs.  Maybe it will stop most of the sneering and condescention, too.  &lt;br /&gt;&lt;br /&gt;Miracles DO happen.  :D&lt;br /&gt;&lt;br /&gt;Again, cyberhugs!</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9163576136255290326/6117402887990711823/comments/default/3494224294805972677'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9163576136255290326/6117402887990711823/comments/default/3494224294805972677'/><link rel='alternate' type='text/html' href='http://www.musicofthewords.com/2009/11/dysautonomia-mothers-view.html?showComment=1258411200777#c3494224294805972677' title=''/><author><name>stefwithnf</name><uri>http://stefwithnf.livejournal.com/</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img1.blogblog.com/img/openid16-rounded.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.musicofthewords.com/2009/11/dysautonomia-mothers-view.html' ref='tag:blogger.com,1999:blog-9163576136255290326.post-6117402887990711823' source='http://www.blogger.com/feeds/9163576136255290326/posts/default/6117402887990711823' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-2098604696'/></entry><entry><id>tag:blogger.com,1999:blog-9163576136255290326.post-4065494366260147810</id><published>2009-11-15T14:14:43.373-08:00</published><updated>2009-11-15T14:14:43.373-08:00</updated><title type='text'>My heart is breaking.  I too am in awe.  Your fait...</title><content type='html'>My heart is breaking.  I too am in awe.  Your faith is amazing and your courage an inspiration.</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9163576136255290326/6117402887990711823/comments/default/4065494366260147810'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9163576136255290326/6117402887990711823/comments/default/4065494366260147810'/><link rel='alternate' type='text/html' href='http://www.musicofthewords.com/2009/11/dysautonomia-mothers-view.html?showComment=1258323283373#c4065494366260147810' title=''/><author><name>Melissa</name><uri>http://www.blogger.com/profile/12960493353454007017</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.musicofthewords.com/2009/11/dysautonomia-mothers-view.html' ref='tag:blogger.com,1999:blog-9163576136255290326.post-6117402887990711823' source='http://www.blogger.com/feeds/9163576136255290326/posts/default/6117402887990711823' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-1626332375'/></entry><entry><id>tag:blogger.com,1999:blog-9163576136255290326.post-5483765727947111261</id><published>2009-11-14T18:12:05.637-08:00</published><updated>2009-11-14T18:12:05.637-08:00</updated><title type='text'>I love you, Mom.</title><content type='html'>I love you, Mom.</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9163576136255290326/6117402887990711823/comments/default/5483765727947111261'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9163576136255290326/6117402887990711823/comments/default/5483765727947111261'/><link rel='alternate' type='text/html' href='http://www.musicofthewords.com/2009/11/dysautonomia-mothers-view.html?showComment=1258251125637#c5483765727947111261' title=''/><author><name>Deb</name><uri>http://www.blogger.com/profile/09027616575779441306</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='24' src='http://4.bp.blogspot.com/_02OD4hUf7Ug/SaRIHTicLQI/AAAAAAAAAHU/0FTbPTp2iGg/S220/703704_shoes.jpg'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.musicofthewords.com/2009/11/dysautonomia-mothers-view.html' ref='tag:blogger.com,1999:blog-9163576136255290326.post-6117402887990711823' source='http://www.blogger.com/feeds/9163576136255290326/posts/default/6117402887990711823' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-695735106'/></entry><entry><id>tag:blogger.com,1999:blog-9163576136255290326.post-7845581802194469705</id><published>2009-11-14T17:01:02.164-08:00</published><updated>2009-11-14T17:01:02.164-08:00</updated><title type='text'>Ah, Sonya. I&amp;#39;m in awe of your strength. (((hug...</title><content type='html'>Ah, Sonya. I&amp;#39;m in awe of your strength. (((hugs))</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/9163576136255290326/6117402887990711823/comments/default/7845581802194469705'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/9163576136255290326/6117402887990711823/comments/default/7845581802194469705'/><link rel='alternate' type='text/html' href='http://www.musicofthewords.com/2009/11/dysautonomia-mothers-view.html?showComment=1258246862164#c7845581802194469705' title=''/><author><name>Autumn Jordon</name><uri>http://www.blogger.com/profile/14168172253998245307</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='26' height='32' src='http://3.bp.blogspot.com/_T27tFUHKzZs/Sf28w1ngTXI/AAAAAAAAAAM/oUQjZXjRsGE/S220/4270+2+4x5+bbwadj.jpg'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://www.musicofthewords.com/2009/11/dysautonomia-mothers-view.html' ref='tag:blogger.com,1999:blog-9163576136255290326.post-6117402887990711823' source='http://www.blogger.com/feeds/9163576136255290326/posts/default/6117402887990711823' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-1190345367'/></entry></feed>
